RAiN CRAG
As part of RAiN, we want children and young people with rare diseases to guide our research so it is relevant to their needs. Through our Children’s Research Advisory Group (or CRAG for short!) we talk to children and young people with rare diseases and get their advice on what we do and how we do it.
Are you a child or young person aged 6-17 who is living with a rare disease, or has a sibling with a rare disease? Are you interested in our research, feel enthusiastic about getting involved, and available and willing to commit to a series of online meetings? If so, join our RAiN CRAG by contacting the RAiN Network Coordinator, Melissa Kinch, below!
First In-Person RAiN CRAG Meetup!
The RAiN CRAG hosted their very first face-to-face event on the 16th of February between 10a.m.-1p.m. at the Office of the Ombudsman. It was a day of fun, collaboration and friendship!
You can read more about the day by clicking the link to the press release, or hear directly from one of the CRAG members about having her voice heard on Rare Disease Day!
Holiday Messages from our RAiN CRAG Members!
